National Recommendations for Rare Disease Health Care

12 Apr 2024

Australia’s first-ever National Recommendations for Rare Disease Health Care (the Recommendations) were launched last month and outline how Australian health professionals can provide high quality care to people living with a rare disease, their families, and other carers.

Individually rare, but collectively common, there are more than 7,000 different rare diseases. It is estimated that 8% of the Australian population live with a rare disease.

While Aboriginal and Torres Strait Islander people are not necessarily at greater risk of rare diseases, several factors increase the potential impact of rare diseases on Aboriginal and Torres Strait Islander people.

The Recommendations were developed as part of the Australian Government-funded Rare Disease Awareness, Education, Support and Training (RArEST) Project, and are available at Rare Voices Australia’s website.

The RArEST team is always keen to connect and hear feedback about their resources; please reach out to the team at RAREST@unsw.edu.au.

12 Apr 2024